Displaying items by tag: mundesley - All Things Norfolk

A Mundesley family have described how care from East Anglia’s Children’s Hospices (EACH) “feels like a big hug when you really need it most”, as the organisation launches a fundraising campaign to provide two ‘star’ nurses.

EACH is asking supporters to do 100 star jumps a day over five days and raise at least £50, as part of Star Makers. The charity hopes its campaign will raise £64,000 in total, enough to provide two of the nurses whose help is so greatly valued by families like the Palmers.

Ellie, six, lives with sister Eva, nine, mum Laura and her mum, Ellie’s grandmother, Heather. Laura is full-time carer to her girls, who are both home-educated, and Heather helps with care, too.

Ellie has Down’s syndrome, Ollier’s disease (a very rare bone disease that occurs in one in every 100,000 people), autism and complex lung and airway issues. She is dependent on a non-invasive ventilator to help her breathing.

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